msnacke: msnacke:msnacke:Yo! You may or may not be following along with my health but I live wit
msnacke: msnacke: msnacke: Yo! You may or may not be following along with my health but I live with Hidradenitis Suppurativa, an autoimmune chronic inflammatory illness that affects the hair follicles all over my body. This condition often quoted as the third most painful lifelong disease. And I can attest to the pain. From even the smallest flares, HS warriors experience extreme pain and immobility. Quality of life drastically changes and all basic human functions become a struggle. My case is stage 2: Hurley stage 2: recurrent abscesses in several different areas of the body, with the initial formation of sinus tracts. Any time I have an outbreak they flare from the size of a dime to the size of two softballs side by side within a few days. My most aggressive outbreak is in my buttocks/groin area. This recurring spot has been affecting me for over four years. Including having it as an open wound for about 17-18 months with little relief. Each flare and each surgery make the next more painful. My scar tissue keeps the wound from opening on it’s own and the pocket is building walls to section off infection inside my body. These walls have to be punctured for the wound to drain. A hot compress can help but isn’t reliable. I have had about 25 incision and drains on my armpits and groin in the 7 years I have been diagnosed. Every spot leaves a scar. Big or small. This disease deforms bodies. My triggers: Genetic history. Second hand smoke or any smoke in lungs by flame. Vaporizing doesn’t have an adverse effect. Stress. Previous damage. Currently I am unable to work due to my condition. (Seeking partial disability/help with health costs). I have been disabled and unable to work for 2-2.5 years collectively over the last 5 years. When I reach this point, my bills do not stop–they double or triple. Medical costs on top of the usual rent, utilities, new car payment, and dealing with every other left turn life has been handing me for the last month. Much of the time, I sacrifice to have the medication I need. How to help: Donations: PayPal only – msnacke@gmail.com Book me for a shoot ahead of time–we will lock in a date when I am in remission or we can shoot limited stuff on days of good health. Become a Patron: Patreon.com/TiffanyNacke Pledge any tier and help me a little each month. I have seen a great amount of love and support this wave. Because of the positivity I intend to create regular videos about my chronic illness, everyday life, body positivity with deforming diseases, and allow opportunities for a weekly live video chat Q&A. Thank you for taking the time to tune in. I would appreciate a like, comment, or share. This is what living with a chronic illness looks like. I’ve been sick more than 30 days now. Without an immune system I’ve caught anything I come in contact with but about tenfold. Way more intense. This has caused me to stay at home and my only work has been selling clips or Snapchat. So I’m about to be behind on bills and the stress could make my disease worse. I’m asking for help here and with those close to me. I have rent due in a few days. I have to eat. My insurance is behind. My electric is behind. This is what chronic illness looks like. support by sharing, donating, buy a clip, join Snapchat, join Patreon. I don’t take handouts. Even if you don’t want something in return, I’ll be here for you. I’m outta work, and fighting disability my self (spinal cord injury) but this talented, wonderful young lady could really use a hand.. Best I can do to help now is share this. :( -- source link