[[Image description: over a grey background, the post reads in large black text: “MY DOCTOR RE

[[Image description: over a grey background, the post reads in large black text: “MY DOCTOR RECENTLY ASKED ME HOW MANY “USABLE HOURS” I HAVE IN A DAY.” Below that, in smaller text, “She told me that a healthy person has, on average, around 10 “usable hours” a day. These hours can be spent going to work, getting errands done, and fulfilling other responsibilities. We realized that, on a good day, I have around 4 “usable hours” with lots of rest in between.—This really hit home for me because, despite knowing better, I still try to keep up with healthy people. I try to squeeze their 10 hours of socially-acceptable responsibilities into my 4 hours each day. The equivalent would be if a healthy person tried to fit 25 hours of responsibilities into their 10 usable hours a day. It also made me understand why I felt like time was slipping me by so quickly; because a healthy person has approximately 6 more usable hours a day than me, 42 more a week, and 186 more a month.”Below this in the lefthand corner is a black box captioned with @strongerthanpots.]] I saw this on Facebook and I LOVE it. I think I’m going to start using this, because telling my doctors how many hours I manage to be awake (6-8 hours usually but sometimes less) is not really getting across to them how incredibly fatigued I really am. They hear I can live alone and manage school part-time (even if it is all online,) so they assume I’m doing okay. It doesn’t matter that sure, I SURVIVE living alone, but some days it’s borderline dangerous, like when I can’t eat or get to my meds, aside from the fact that living alone and being this fatigued means that I never eat meals that take more that 5 minutes to make, my floors haven’t been vacuumed in a month, and my clothes do get cleaned, but then live in the dryer or the laundry basket until I wear them and throw them back in the washer, and they never make it to the drawers because that’s too much energy on a task that’s technically not necessary. But my usable hours per day are like, maybe 5 on a really good day, and school takes ALL OF THEM. Some days I only manage to feed myself and my pets, which is about 2 usable hours. No wonder I’m always behind. -- source link
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