Hey guys! i am scheduled for surgery! They’ll place a Tenckhoff cathether in my stom
Hey guys! i am scheduled for surgery! They’ll place a Tenckhoff cathether in my stomach so that I can start peritoneal dialysis. This is necessary becasue of my MNGIE - a very rare mitochondrial disease - thymidine is building up in my body and its causing me extreme pain and nausea. Only after this can I receive stem cell transplant - for which I got bad news today.What is MNGIEFirst, we still dont have a hospital that is willing to the stem cell transplant so far - the only hospital in Hungary is not willing to do it - citing that they have never done such procedure on a MNGIE patient. Second, the dna testing of my parents came back today and they’re both carries of this disease. I am like still coping with that information. But my sister is healthy! This means my possible donors from 3 went down to 1. :(other than that I am still deaf, unemplyed, need meds, special foods for my diet and I have no income. Here is my older post with my medical documents.Please donate to my paypal if you can paypal.me/gameofstyleReblogs help as wellThank you so much!!! -- source link
#donation#paypal#please help#signal boost