the-nurse:trauma-princess93:mursejesse:letswakeupworld:¨Faces of Cystic Fibrosis¨ - Kyle MonkCystic
the-nurse:trauma-princess93:mursejesse:letswakeupworld:¨Faces of Cystic Fibrosis¨ - Kyle MonkCystic Fibrosis is a genetic disease that includes progressive damage to the respiratory system and chronic digestive system problems. Airway clearance techniques and nebulizers are treatments that help people with cystic fibrosis stay healthy and breathe easier. Nebulizers break down medication into a mist, and allows a patient to inhale the medication through a face mask or mouthpiece. Some quotes from children photographed in the series:¨My nebulizer is a machine that turns my liquid medications into a mist so that when I breathe in while wearing the nebulizer mask the medication can go deep into my lungs.¨¨It’s like a disease where you have to take pills whenever you eat and you have to do your breaking and shaking every morning and every night. Then you have to do this nose stuff to wash out your nose and that’s all. It’s really easy.¨¨I was ten-and-a-half when the doctor walked into the exam room and told my mom and I the devastating news. My mom was sad and trying not to cry - we both knew about this disease because a relative died at the age of twenty-two. I asked the docter if I was going to die and he said ¨It’s possible…¨ The doctor told me that I would have to use a machine called the VEST every day for the rest of my life to break up the mucus in my lungs.¨When I learned why their main charity is called Sixty Five Roses…I’m not a public cryer, but damn if I didn’t get a bit teary.I had to Google why and now I’m really upset. :(Kids with CF are so incredibly strong -- source link
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