lantanae:micdotcom:Watch: Heartbreaking video shows why the ALS ice bucket challenge really mat
lantanae:micdotcom:Watch: Heartbreaking video shows why the ALS ice bucket challenge really matters Anthony Carbajal’s video is a powerful reminder of why we do the challenge in the first place. It’s not because of narcissism or tagging friends or to be purposely irritating — it’s because ALS is a dark reality for thousands of people, and for the first time Carbajal can remember, they have the spotlight. How he’s personally been impacted | Follow micdotcom Anthony Carbajal is attributed by many to be the creator of the Ice Bucket Challenge, done to raise awareness for his mother’s congenital ALS in 2014. Anthony has also inherited ALS and has been living with the condition since he was 26 years old. He is a photographer who offers online courses in street photography and whose profile is available online at his website.As of 2020, Anthony’s need for care has progressed to a point where he is requesting financial support in order to remain out of an assisted living home. “I am at a point in my disease where I require a caregiver with me 24/7. The good news is, I can live + extend my life for a very long time w/ medical equipment and around the clock care. But at what cost? Our health care system is broken, so I have to rely on the kindness of strangers.”