I’ve spent so much of my time since my arterial rupture, neck deep in the medical system;
I’ve spent so much of my time since my arterial rupture, neck deep in the medical system; barely treading water, but it’s gotten me so far. Things are getting close to as under control as they’ll probably ever be, given that my conditions are degenerative and progressive. It’s time to really pull things around and live as hard as I can again. I think I’ve always done as much as I can to be authentically me, but this year I’m determined to get back some of what I’ve lost (whatever small amount I can). It’s time to restore balance. I’ve already come so far in the past 3-4 months and after spending hours again this week wrapped up in medical stuff sapping my energy, I’m once again reflecting on when I can finally direct all my energy to my passions again. I may never have that luxury again, and I have to be okay with that, but what I’ve been pushing for this entire time, Quality of Life, is all about having the energy, time and freedom to have a life outside of the medical complex. I’m almost there. I can feel it. {please don’t remove my words} -- source link
#wheelchair#spring#new year#fashion#wheelchairlife#mitochondrial disease#mitochondrial myopathy#neuromuscular#secret cats#wheelchair user#medical system#medical complex#medical#disability#disabled#lantern#lights#granville island#degeneration#progression#bouncing back#non binary