Ehlers

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Each interaction I have with a doctor bridges a gap between our knowledge of my body. Every interact

rosalindrobertson: #hospitalglam in a late night at Mount Sinai - Abandoned hospital corridors at 1a

The reasons for why the wonderful okapi has been chosen as the new mascot for HSD/hEDS!! Chosen by u

#Repost @perpetual.reflections ・・・ #okapistrong . With this project, we stand for the separation of

zemma06:Unrest movie is a brilliant documentary about chronic fatigue syndrome I’m so glad chr

Last week, my friend Heather Albright, pictured above with her son Jared, passed away as a result of

karolynprg: I continue to practice #HospitalGlam at every visit and procedure because my relationshi

TBT the only time a professional has ever taken my photo I am a beautiful flower . . . . . (This is

So my body fell apart & I’m slowly getting it back together with doctors & phy

ehlersdanlos: shiftythrifting: Not really thrifted I guess, but I came across this rather suggestiv

ehlersdanlos: shiftythrifting: Not really thrifted I guess, but I came across this rather suggestive

#Repost @theokapioandp・・・#repost from @taylers.danlos The okapi is the new EDS mascot. Why? As many

It starts… #floridaweather #floridarain #hurricaneseason #eds #ehlersdanlossyndrome #ehle

#Repost @theokapioandp ・・・ #repost from @taylers.danlos The okapi is the new EDS mascot. Why? As ma

#Hospitalglam: I had an echocardiogram this morning, at the big LA hospital I go to which feels like

#HospitalGlam: Same day, different providers. In the top photo I’d been arguing with techs and

Inspired by my friend Kristen on Instagram to do a little #bedrestmodeling. Although, not technicall

#HospitalGlam: Same day, different providers. In the top photo I’d been arguing with techs and

karolynprg: #HospitalGlam: The tech and I spoke about procedural stress, and how seeing something fr

Having some fun down at the beach today. Still cold, but getting me excited for summer (I’

Troubled Waters.

I am noodle. When being disabled keeps you from keeping your home in order.

Android in Space. I’ve finally discovered a way to break the icy exterior of my Internist&hell

My finished 1920s fashion colouring page. I’m loving this colouring book. I want to find more

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