Last week, my friend Heather Albright, pictured above with her son Jared, passed away as a result of
Last week, my friend Heather Albright, pictured above with her son Jared, passed away as a result of Vascular Ehlers-Danlos Syndrome (VEDS). While her life was way too short, it could have been much shorter. Most people with VEDS don’t know they have it until they’ve experienced a fatal or life threatening event. The vast majority of patients have never heard of VEDS before they’re diagnosed, and by then it is usually too late. Please consider reading this and reposting. There is no cure, but early intervention can drastically prolong lives. If you suspect you have VEDS, contact your doctor immediately. Print out these pages and keep them on hand just in case while you wait for a proper diagnosis: VEDS Emergency Information Ritter Rules (Everyone with EDS should have this information with them, but it’s particularly important for people with VEDS) Here’s a link to Heather’s obituary, which includes information on how to donate to a trust for her son Jared, who is also dealing with VEDS. -- source link
#vascular eds#chronic illness#signal boost#medical#rare disease#eds canada#ontario#owen sound#toronto#disability#invisible illness#spoonies#ehlersdanlossyndrome#spoonie#ehlersdanlos