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ehlersdanlos: shiftythrifting: Not really thrifted I guess, but I came across this rather suggestiv
karolynprg: I continue to practice #HospitalGlam at every visit and procedure because my relationshi
Since it’s past 12am EST, it’s my birthday! I’m 35 today, which kind o
ehlersdanlos:shiftythrifting:Not really thrifted I guess, but I came across this rather suggestive c
I had the incredible pleasure of getting to visit and chat with @toitroutman for a little while last
Like @annieelainey & @michelle_roger said, #AmbulatoryWheelchairUsersExist. My joints sublux
Each interaction I have with a doctor bridges a gap between our knowledge of my body. Every interact
karolynprg: Examined or Seen #HospitalGlam —— #invisibleillness #disability #ehlersdanl
rosalindrobertson: #hospitalglam in a late night at Mount Sinai - Abandoned hospital corridors at 1a
The reasons for why the wonderful okapi has been chosen as the new mascot for HSD/hEDS!! Chosen by u
#Repost @perpetual.reflections ・・・ #okapistrong . With this project, we stand for the separation of
zemma06:Unrest movie is a brilliant documentary about chronic fatigue syndrome I’m so glad chr
Last week, my friend Heather Albright, pictured above with her son Jared, passed away as a result of
karolynprg: I continue to practice #HospitalGlam at every visit and procedure because my relationshi
TBT the only time a professional has ever taken my photo I am a beautiful flower . . . . . (This is
So my body fell apart & I’m slowly getting it back together with doctors & phy
#okapistrong #Repost @perpetual.reflections ・・・ I no longer support the ehlers danlos society. A fe
ehlersdanlos: shiftythrifting: Not really thrifted I guess, but I came across this rather suggestiv
ehlersdanlos: shiftythrifting: Not really thrifted I guess, but I came across this rather suggestive
#Repost @theokapioandp・・・#repost from @taylers.danlos The okapi is the new EDS mascot. Why? As many
It starts… #floridaweather #floridarain #hurricaneseason #eds #ehlersdanlossyndrome #ehle
#Repost @theokapioandp ・・・ #repost from @taylers.danlos The okapi is the new EDS mascot. Why? As ma
#Hospitalglam: I had an echocardiogram this morning, at the big LA hospital I go to which feels like
#HospitalGlam: Same day, different providers. In the top photo I’d been arguing with techs and
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