Ehlersdanlos

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LIVE

Inspired by my friend Kristen on Instagram to do a little #bedrestmodeling. Although, not technicall

#HospitalGlam: Same day, different providers. In the top photo I’d been arguing with techs and

karolynprg: #HospitalGlam: The tech and I spoke about procedural stress, and how seeing something fr

Having some fun down at the beach today. Still cold, but getting me excited for summer (I’

Troubled Waters.

I am noodle. When being disabled keeps you from keeping your home in order.

Android in Space. I’ve finally discovered a way to break the icy exterior of my Internist&hell

My finished 1920s fashion colouring page. I’m loving this colouring book. I want to find more

I dislocated my jaw, so this is my dinner. Let no-one tell you the spoonie life isn’t glam

#Repost @faeriebearart (@get_repost)・・・Day 21 of #30DaysofAutismAcceptance writing on co-occurring d

2019: the year I die. #hospice#digestivetractparalysis #gastroparesis #ehlersdanlossyndrome #endofli

Le dentiste ne peut rien faire pour mon problème de mâchoire. À défaut de pouvoir manger une bonne p

#sed #eds #syndromedehlersdanlos #ehlersdanlossyndrome #chronicpain #chronicillness #douleurschroniq

#Repost @world.we.want (@get_repost)・・・It’s Virgo season & to celebrate we have an interview up

#Repost @world.we.want (@get_repost)・・・New interview up: Kiran (@kiranmnigam ) discusses nutrition a

‍♀️‍♀️I’m still not over how beautiful my wall is. Thanks @marsupialpudding for painti

JOY OF JOYS, #ehlersdanlossyndrome subtype testing *finally* achieved. (IT ONLY TOOK MOST OF A FREAK

On my plane, lifting off soon. Asked to have my window seat changed to an aisle seat, because of my

Please enjoy this Potato Post it portrait I did at work today. I do not want to be here. I missed on

New hair who this? #eds #ehlersdanlossyndrome #fibromyalgia #chronicillness #chronicpain #spoonie #z

EDS and a puppy. Its hard to see because most camera software these days are designed to hide flaws

I’m not sure what is going on, but the muscles in my knee keep twitching randomly and I ca

karolynprg: This is my whiteout pain face. It doesn’t look as depicted on the pain scale. #Hos

It’s #RareDiseaseDay. Sometimes I don’t know whether I should post on this day because t

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